A short post to bring a new paper to your attention: Developing a consensus research definition for profound autism using a modified Delphi method https://link.springer.com/article/10.1186/s13229-026-00727-y
Follows on from the INSAR conference proceeding that moved things on from the previous US CDC definition that moved things on from the Lancet introduction.
Highly likely that there'll be more honing of the term and what it covers but the reasons for not using it (or using some other word salad) are getting smaller and smaller and smaller...